Chris Draft Family Foundation / Team Draft
Patient-led survivorship advocacy uniting families, communities, and clinicians to change the lung cancer narrative.
Visit websiteResources & Patient Education
Education that informs. Advocacy that empowers.
A curated starting point for patients, caregivers, and advocates — built around our partners, the wider advocacy community, and trusted research resources.
Patient Education Partnership
Education that empowers.
CACHEducation
PatAdvHub partners with CACHEducation to bring rigorous, plain-language patient advocate training to our communities. CACHEducation develops educated, confident patient advocates who can engage meaningfully with researchers, clinicians, and policymakers.
Learn About CACHEducationWhat you'll find
- • Foundational advocate training
- • Research literacy and engagement
- • Plain-language patient education
- • Practical tools for community advocates
Patient Advocacy Organization Directory
Trusted patient advocacy organizations across the disease areas we serve. Listing does not imply sponsorship or endorsement.
Lung Cancer
LUNGevity Foundation
The nation's leading lung cancer-focused nonprofit advancing research, education, and patient support.
Visit websiteGO2 for Lung Cancer
Comprehensive patient services, screening advocacy, and survivorship support for the lung cancer community.
Visit websiteMPNs (MF, PV, ET, SM)
MPN Research Foundation
Funds research and supports patients living with myeloproliferative neoplasms.
Visit websiteMPN Advocacy & Education International
Education and advocacy programs for MPN patients, caregivers, and healthcare providers.
Visit websiteLeukemia & Lymphoma Society
Patient support, education, and research funding across blood cancers including MPNs.
Visit websiteAML / AMML
Leukemia & Lymphoma Society
Information, financial support, and clinical trial navigation for acute leukemia patients.
Visit websiteHealthTree Foundation for AML
Personalized education and tools helping AML patients understand and act on their diagnosis.
Visit websiteBrain Cancer
National Brain Tumor Society
The largest patient advocacy organization committed to brain tumor research, policy, and patient services.
Visit websiteAmerican Brain Tumor Association
Comprehensive resources, support, and research funding for the brain tumor community.
Visit websiteColorectal Cancer
Colorectal Cancer Alliance
National patient advocacy organization driving screening, research, and patient support.
Visit websiteFight Colorectal Cancer
Champions policy, research, and a strong survivor community in the fight against colorectal cancer.
Visit websiteResearch & Advocacy Resources
Cross-cutting organizations supporting patient-centered research and advocacy.
PCORI
Patient-Centered Outcomes Research Institute — funding research that helps people make informed health decisions.
Visit websiteNational Health Council
The united voice of people with chronic diseases and disabilities, and a leader in patient engagement.
Visit websiteResearchMatch
A free, secure registry that helps connect volunteers with researchers across the country.
Visit websiteClinicalTrials.gov
A database of privately and publicly funded clinical studies conducted around the world.
Visit websiteGenetic Alliance
A nonprofit network transforming health through genetics, advocacy, and inclusive research.
Visit websiteNote: All external links are placeholders pending verification.